Welcome To The Website of Hope
My name is Peggy Symons.
I am a writer, a daughter, an aunt, and a sister to seven siblings.
I am a friend to many and I am proud to be called a friend of many. But most importantly, for this website, I am an advocate for the understanding of mental illnesses. I am an individual who has lived with a major mental illness most of my life and struggled to find meaning and order in its cyclone of symptoms.
I would not have survived the neurobiological destruction of this powerful disorder of the brain without a village of assistance. Family, friends, expert and attentive professionals and the National Alliance on Mental Illness of Greater Orlando have surrounded me with encompassing help and hope. I am also grateful to my faithful friend Tandy C. Chiles for the advice and encouragement that has kept me grounded for twenty years. Without the lantern of hope that she carries I would have lost my way entirely.
As I travel through this life I see so many others who have gifts to bring to the table of life, although mental illness would try to hide or bury these gifts.
All of us need a village of assistance. Daily vigilance, medication, freedom from stress and the safe harbor of my family and friends have helped kindle the message of hope I carry and given me the courage to share the light of my journey.
As for me and many others this illness doesn’t go away – it remains encrypted in biological code that is not yet completely understood. But hope is the resting place where the darkness of mental illness gives way to light.
My hope is to give you a life-line; for yourself, a family member or a friend that suffers from often-misunderstood illnesses that will touch the lives of one in five people.
My desire in creating this website is to bring hope to the hopeless, light to those in darkness, and beauty to those who cannot yet see the hope of God's rainbow.
I invite you to join me in this unending journey with hope and her sisters, light and beauty. This is the inspiration for my website.
2019 NAMI WALK
April 27, 2019 Altamonte Springs, Florida
National Alliance on Mental Illness Annual Fundraising and Awareness Walk
It has been a long time since I did any fund raising but at age 65, I am now a witness to a revolution in the way mental illnesses are viewed and therefore treated. I would love to be part of this new hope.
There are many ways to support NAMIs message of hope:
Come walk with us. It doesn’t matter if you don’t have a donation.
Volunteer to help us on Walk Day.
Become a voice of advocacy for over 43 million people living with a mental illnesses, including children, who often cannot speak for themselves.
Join the army of young people bringing mental illnesses out of the shadows of stigma into the full light of understanding and acceptance.
Learn the warning signs of mental illnesses. (At 65, I am still learning.)
The gifts given in the spirit of NAMI WALKS are not only given they are received. You cannot walk with hope without holding its light.
The visions written into the article “Hope is a Worthy Walk” are the substance of hope and its power to heal. They are the reason I walk with the National Alliance.
Thank you so much, Peggy
To make an online donation, just click on this link which takes you directly to my fundraising page.
For those who prefer to write a check, please make it payable to NAMI Greater Orlando and write my name on the memo line.
Mail directly to: Barbara Aikens, NAMI Greater Orlando,
Please write "In support of Peggy Symons" on the envelope. Every gift is appreciated!
HOPE IS A WORTHY WALK
“Hope is a Worthy Walk” comes to my mind every year when the National Alliance on Mental Illness of Greater Orlando gears up for the annual fundraising and awareness walk.
The Walk always brings me back to a vision of looking through a window into a barren back yard.
I see what is left of winter. There is a drab picket fence, sticks and dry branches, plants and fallen leaves bitten by winter’s last frost.
I can almost hear twigs snapping under my feet as I walk through the yard searching for something brighter or some sign of new life. As I walk, I sift through the fallen leaves of the vision and find the ashes of all the lost years of my life.
Having failed to improve on over two dozen medications, I lived with the hopelessness of twenty-five years of my life lost to chronic, treatment resistant schizophrenia and depression; I was hospitalized more than sixteen times.
Throughout those years I didn’t see any hope or a future because there was no light; all I could see is what seemed to be endless suffering. In the 1970s the only answer offered to my family and I was blame and shame.
But hope was waiting like dawn waits for the rising sun. Between 1998 and 2000, through persistent doctors who refused to give up, new medications came and dusted this illness from my eyes.
Well into my forties I woke up to see the sun for the first time in my life. I never forgot the light or people who still live in the shadows of lost hope. I saw my story become their stories. I saw beauty for ashes, light for darkness, and hope for despair.
The National Alliance walks in the same light that sweeps over the back yard and its broken branches. In this vision, I see flowers of every color, shade and hue, even subtle shades of the same color. Each flower is different and stretched out as far as I could see. All of them are turned toward the sun; they are moving in the wind.
I hear hope stirring and know there is power in the shadow of its wings, and so, the vision grows and I see that you are the flowers.
The precious gifts and talents you bring to NAMI’s walk are already being gathered from the garden of hope.
Not only are the days brighter with brilliant blooms of hope but all of tomorrow is blessed by the fragrance of your gifts. They are a splash of hope and beauty; they are lighting the way of the Walk.
The flowers and what they mean to me is as real as the withered back yard and its fallen leaves.
Every gifted flower is different; unique in purpose and design; whether it is a smile to encourage the walkers, the gift of time or the funds and resources we need to keep walking in the light of the vision. Every gift is a seed of hope. Out of this vision, NAMI is walking and I know where we are going.
From the 1990’s I watched the National Alliance on Mental Illness rise out of the darkness of lost hope to seize the shadows of stigma and stereotypes, to bring us into the legitimacy of the light and to pursue the cause of equal rights
In 2019, we are still walking in the same direction. Every step we take runs countercurrent to the misunderstanding that is so much a part of living with the disorders of the brain that cause serious mental illnesses. In an encouraging sign of the times, many young people will be walking with us and for us. They are a generation reaching up to embrace the power of change.
NAMIs hope also reveals many people who are dragging each step out of a well of weariness. They don’t know what to do or where to find help.
They have no hope; vision has failed in the difficulty of their walk; without us, they struggle alone.
We are bearing their banner and walking the walk for thousands who are silent; people who have no other hope of accessing services or support.
Like the beauty of the flowers, hope is tangible, its real and it is a living thing.
The National Alliance has given this to me and I’m giving it back knowing that hope is a gift of many colors and lives; there is power in its steps.
NAMI is walking with hope. Those who seek this gift will find it. If we plant it, people will come.
Time is turning in our hands; those who have no hope are calling out for our gifts.
The services of the National Alliance on Mental Illness are free. They are a lifeline; a bridge between despair and its struggle to endure and the hope of healing that comes with access to care. The gifts we gather as NAMI WALKS will help us provide another year of services for those in need.
I will proudly be walking as a team member for BE THE CHANGE and ask that you consider supporting our efforts by walking with us or helping us with a donation. Come and join us on April 27th at Cranes Roost Park in Altamonte Springs, Florida.
Be the change; hope is a worthy walk.
Peggy J. Symons
“Hope is a Worthy Walk” is written in deep appreciation for my brothers and sisters and all the love and support they have poured out for me over so many years.
Common warning signs of suicide.
National Suicide Prevention Lifeline
No matter what problems you are dealing with, we want to help you find a reason to keep living. By calling 1-800-273-TALK (8255) you’ll be connected to a skilled, trained counselor at a crisis center in your area, anytime 24/7.
If you feel you are in a crisis, whether or not you are thinking about killing yourself, please call the Lifeline. People have called us for help with substance abuse, economic worries, relationship and family problems, sexual orientation, illness, getting over abuse, depression, mental and physical illness, and even loneliness.
Bullying: An Appeal to Hero’s Hearts
This is a story about the heart of a hero.
I attended a Catholic school for several years. By seventh grade I was clearly struggling with a mental illness. But all of us wore the same socks and uniforms and I was never bullied in a school atmosphere that required respect for other students.
Transferring into the public-school system was a shock. Between wearing a uniform for so long and cluelessness and I had no idea what to wear the first day of school. I looked in my closet and pulled out a red skirt, a purple blouse and red sneakers along with socks. I had no idea at the time, public school girls didn’t wear socks or red sneakers.
From the first day I was a target for ridicule and rejection. Among other things I was quickly labeled with the name of a bear on a TV show. When I was taking a shower after gym class the kids took the clothes I put on a hook outside the shower and threw them into a sink full of water. Before class they took my books and put them on top of the public address box near the ceiling where I couldn’t reach them before substitute teachers stopped it.
In November, my mother allowed me to walk up to the neighborhood shopping center to buy a jacket. I bought a blue size twenty jacket although I was a size fourteen because I thought I was getting more material for my money. Looking back, wearing the jacket to school was a mistake; it was so big I was probably floating in it. The other kids spotted the ill-fitting jacket immediately and it became the object of more ridicule.
One time, uninvited and unexpected, I sat down at a table in the cafeteria with a group of popular students.
One boy was so embarrassed his face flushed red and he left the table. No one wanted to be seen with me. I was weird, overweight, had unwashed frizzy hair and could not relate to the other kids.
I felt totally alone even though there were hundreds of students in my school. I could not find friends on my own because I had difficulty communicating like everyone else.
The bullying and rejection hurt me as if I was being stabbed by a knife. I could not fight back. I didn’t know how.
Let me tell you about a boy named Bob. He sat next to me in math class. He was friendly, popular and a good student. I was the weirdest, ugliest, most unpopular kid in the school.
But Bob talked to me in full view of the other kids risking his own good standing with them. He joked around and treated me the same way he treated his other friends.
About half way through the year he invited me over to his house to look through his new telescope. I saw the moon up close and how bright the stars were through the lens of the telescope and the respect of my friend.
Finding friends in kids who are being bullied is the truest test of a hero’s heart. It is doing what is unpopular or even laughed at.
Like Bob, heroes have the courage to split off from what other kids think and reach out to kids who are being torn to pieces by bullying because they have a mental illness; kids who can be rejected and avoided as the weirdest kids in the whole school.
It’s easy to see hero’s when they run into burning buildings to pull others to safety or come to the rescue of someone who is drowning. It’s harder to see the hero’s hearts of kids who see the helpless pain and desperate loneliness of bullied kids and pull them to safety in the hands of friendship.
When Bob reached out and befriended me he rescued me from the torment of rejection, loneliness and hopelessness.
I lost track of Bob after high school but I will never forget a hero’s heart because my friend turned towards me, instead of away. He pulled me into the safety of complete acceptance.
I will never forget Bobs kindness and the risks he took to be my friend.
I will never forget my hero.
Peggy J. Symons Copyright
The Gift of a Captive Mind Continues to be Written.
The original title of this book was Mental Illness: Notes of a Native in the Night. Over time, notes became stories and then pages and chapters.
As I wrote, I began to see the value of The
Gift of a Captive Mind filling out the academic presentation of mental illnesses.
The Captive Mind doesn’t contradict the facts and statistics essential to the academic press, instead, it writes between the lines with the actual experiences of living with these illnesses.
In the end,The Gift of a Captive Mind
becomes a gift for every mind.
It tunnels through a lifelong illness and comes out into the places we are all alike in one way or another.
Whether or not we have a mental illness we
are all running the same rapids.
But it is also important to know these disorders can be persistent, biological and there are currently no cures. So, it is not possible to tell the story of a Captive Mind and put false faces on these illnesses lest anyone who walks this way become discouraged in their own struggle to survive.
Like many others I live with sufficient remnants of this illness and its habits of reemergence that I would never leave any impression I have walked completely away from a serious mental illness in some act of high- held virtue.
During the time The Gift of a Captive Mind
was written, I finished a book about thirty years of posttraumatic stress disorder and finding my way out.
It took thirteen years to write.
Someday, I hope it will lead others out of the captivity of Post-Traumatic Stress.
Capturing Rosalyn Carter,
Rosalyn Carter was first lady to President Jimmy Carter. She was a passionate, public and powerful advocate for people dealing with mental illnesses.
At the time she wrote this letter (March 23, 2007) Mrs. Carter was a high profile ally of the national push to enact laws mandating insurance coverage for mental illnesses and substance use to be equal to other medical conditions.
On October 3, 2008, the Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act was passed into law.
I hope Mrs. Carter is remembered for the lantern of hope she carried and her willingness to pursue justice on behalf of people who have no voice.
Millions were touched by her light.
Fund mental care before a tragedy
Orlando Sentinel -Tuesday, June 3, 2014
Since the Columbine High School shootings in Colorado 15 years ago, one mass murder after another has shaken
the nation. The latest rampage was at the hands of a California man who had a long history of mental illness.
It is a grave error to look away from the high-profile tragedies seizing other states with the complacent illusion that somehow Florida is immune from the toll and consequences of untreated mental illnesses.
Keeping in mind that people living with serious mental illnesses are overwhelmingly nonviolent, it is becoming increasingly clear that there is a small fraction of individuals who do become violent, almost always in the absence of treatment and modern medications.
Legitimate debate over how to prevent further loss of life is breaking out all over the nation, including Florida. Searching for answers to violence and mental illnesses must encompass the fact that the greatest loss of life to mental illness in Florida isn't to homicide; it is to suicide and early death accruing through decades of restricted access to timely and effective psychiatric services.
Suicide rates are rising; 2,922 people in Florida ended their lives in 2012. More than 90 percent of those who commit suicide have a diagnosable mental illness.
In addition, nearly two-thirds of those suffering with these diseases of the brain are not receiving treatment.
More than two dozen psychiatric hospitals have closed since 1995, leaving thousands of the most acutely ill people in the state nowhere to go.
These statistics are a sliver of Florida's fatally flawed policy of neglecting serious mental illnesses.
Prejudice and discrimination have put serious mental illnesses at the back of the bus for decades; yet lawmakers never seem to see the collision between failed public policy and preventable loss of life.
Predictably, the 2014 Legislature convened and adjourned leaving Florida stubbornly stuck at 49th in the nation for funding community-level psychiatric care.
Until the state of Florida is stunned into action by a sudden strike of violence, significant reform of one of the nation's most inadequate and underfunded mental-health systems will remain mired in low priorities and the hidden suffering of thousands of people, including children, who are shut out of any hope of recovery from serious mental illnesses.
There are warning bells tolling through every life lost to mental illnesses. We cannot turn away as if we do not hear; the bells are tolling for us.
Mental illness treatment left out of Parkland shooting
Intense media coverage of the school-shooting rampage that left 17 people dead is creating a detailed picture of what happened. However, there are missing tornadoes in the multitude of these accounts.
The hardest hitting is failure to spotlight the magnitude of suicides associated with mental illnesses. People are ending their own lives at a rate over double that for homicides and at numbers that exceed traffic fatalities. Ninety percent had a diagnosable psychiatric disorder, including concealed depression.
Without fully assessing the shocking death toll of those with mental illnesses, there is no cohesive vision to bring the treatment of mental illnesses to the forefront of legislative priorities.
Relatively small bumps in funding sideswipe the truth: Mental illnesses in Florida are seared with hopelessness. We remain immovably present at the bottom of the nation for per-capita spending on mental illnesses in spite of a deep need and some dedicated lawmakers who have already tried to pursue a path forward.
Given the staggering death toll associated with these common disorders of the brain, we can’t do anything less — not without compromising the right to life.
Peggy Symons of DeLand, Florida
February 26, 2018
Letters to the editor Thursday, October 23, 2014
Daytona Beach News-Journal
Greatest toll of gun violence
Mary Sanchez’s Oct. 13 column, “Guns, mental illness equal tragedy,” considers the impact of neglecting these illnesses with an indisputable point: Some of our most profoundly ill citizens are falling through the cracks of a deeply flawed mental health system and landing with deadly force.
Contrary to the high-profile violence that keeps grabbing headlines, the greatest toll of mental illnesses isn’t murder — it is suicide. Suicide outnumbers homicide at a rate of approximately 2-to-1, and 90 percent of those who die by their own hands have a diagnosable mental illness. Any other medical condition with preventable mortality rates this high would command swift, decisive and newsworthy action.
But we continue to pursue a path of complacency rife with imminent danger. Unfortunately, Florida is leading the way, at 49th in the nation for per-capita spending on mental illnesses. Two-thirds of those in need of psychiatric services, including children and teens, are going without treatment. Every year the hope of families desperate for psychiatric services rises and then falls as the Florida Legislature makes annual budget decisions that segregate mental illnesses into a category of conditions deemed to be unworthy of medical care. It is unthinkable that we would deny medical treatment, hospital services and social assistance to people suffering with cancer and heart disease or turn them out onto the streets to die, become homeless, imprisoned or victims of violent crimes, but it is to this measure we have abandoned our mentally ill.
The greatest toll of mental illnesses comes with the death of hope. Suicide is the mortal wound of despair.
The best way to disarm mental illnesses is to provide immediate access to effective psychiatric services before these treatable disorders of the brain take their last breath in preventable acts of violence.
Peggy J. Symons
Care could save lives, money
The News-Journal's front-page focus on Florida's failed mental health system was well-timed and graphically accurate.
Although violence is not inherent to mental illness, the shootings in Newtown, Conn., have pushed
Florida's response to mental illness into the headlines.
The neurobiological legitimacy of mental illnesses has been established for decades. However, the belief that these illnesses are character flaws or the consequence of personal irresponsibility are still widely held stereotypes. Unfortunately, they continue to drive funding decisions in Florida.
Without understanding the costly consequences, slashing funds for psychiatric services and modern medications creates an avalanche of losses, most of them hidden.
Mental illnesses, like any other medical condition, can get worse without treatment. Long waits for appointments and restricting access to medication creates dismal outcomes. Of note, Harvard Medical School found that missing as few as one day to 10 days of antipsychotic medications doubles the risk of hospitalization.
In addition, mental illnesses in Florida are still shackled to inappropriate criminalization. At the rate Florida is using prisons for hospitals, taxpayers are on the hook for $3.6 billion in the next 10 years to build and operate new state prisons. Without fundamental reform of the criminalization of mental illness, taxpayers will continue to feed a perpetual-motion machine with grinding jaws.
But the ultimate cost of mental illness is suicide. Suicides now outnumber traffic fatalities. Ninety percent of those who commit suicide have diagnosable and treatable mental illnesses. The measure of suffering imposed by mental illnesses is in these numbered lives; many of whom had no hope of help.
Clearly, the most expensive treatment of mental illness is no treatment. Florida's mental-health system is in critical condition. Our legislators must reframe funding decisions based on Florida's facts. When people with mental illnesses win, everyone wins.
PEGGY J. SYMONS
of DeLand, Florida
Capturing Esmine Green
I have come to bring Ms. Esmine Green out of the shadows of lost hope and cries of unheard anguish.
On June 19, 2009, Ms. Green was taken by ambulance to Kings County Hospital in New York City acutely ill with schizophrenia.
She sat and waited over 24 hours until blood clots formed and killed her.
Although she writhed, fell out of her chair onto the floor and died, she was ignored until a worker finally came over, pushed her with his foot and saw she was dead.
Evidence of her death and the circumstances in which she died were immediately scurried away in falsified documents. Ms. Green died waiting for help that never came.
I will never forget the brutal force of indifference to her suffering or the global news and outrage covering her 24 hours in hell.
I also knew Ms. Green would be quickly and completely forgotten-and she was.
The helpless horror of the way she died disappeared as fast as it burned the news but conscience and accountability were standing by with a note pad.
Everything was video recorded and subsequently obtained by the Americans for Civil Liberties Union.
The city settled with her family for two million dollars but what price was paid for the violence of indifference?
Ms. Green was not a captive of bygone era; she was captive of a place she didn’t matter.
We should not forget her story; she left red flags flying over indifference. It is the nucleus of neglect and the crown jewel of hidden abuse.
Peggy J. Symons © Copyright
THE DYING BIRD
Sometimes violence is in the eyes of the beholder.
This is a true story.
I had taken my friends dog to the vet. As the dog and I were settling our account at the front desk, a young man came through the front door. His hands were cupped together, he was holding something. He looked to be in his twenties and was obviously mentally ill. He had long, dark hair flying everywhere. He was also dressed in rags, I had little doubt that he was homeless as well.
When he approached the desk I could see he was holding a badly injured bird in his hands. He asked the ladies at the desk if the vet would take care of the bird.
Whether it was because he was mentally ill or poor or that it was true they didn’t take care of birds, they sent him away with the injured bird in his hands.
As my own tears fell I thought the world has it all backwards; it isn’t always the violence caused by people who live with mental illnesses that steals from society; it is the hardness of heart that sees our humanity and turns away.
I don’t know what happened to the bird or where the young man went, but I will never forget what compassion looks like when it is cradled as a dying bird in the hands of a human being who is mentally ill and homeless.
Peggy J. Symons of Deland, Florida
Copyright © Peggy J. Symons
Mental Ilnesses and Mental Health: Capturing the Slippery Bridge
Another article on death due to “mental health disorders” captures the slippery bridge between mental health and mental illness.
What seems a minor twist of language is a symptom of a broad national consensus to engage the words “mental health” and pretend they mean mental illness.
Misappropriating “mental health” is so deeply entrenched it is difficult to refer to these disorders of the brain without using deceptively uniform language that corrupts the biological nature of these hard hitting diseases.
Stripped of charades, the irrelevant words “mental health” are a wink and a nod hiding an insurgent truth
America’s “mental health” system is fractured, failed and vastly underfunded, leaving millions of people behind with no hope of recovery.
In a travesty of mistaken identities, one in five individuals, including many children, are struggling to survive brain diseases with extraordinary mortality rates but their “mental health conditions” makes it easy to deny treatment and modern medications and then turn away from the death and devastation that follows. We are hiding their hopelessness in a familiar clash of opposing words.
Ninety percent of those who end their own lives have a diagnosable mental illness. Virtually meaningless “mental health disorders” do not drive people to suicide; mental illnesses do.
Switching illness for health allows us to bury this massive loss of life in an avalanche of indifference without bearing the weight of conscience.
In addition, these neurological disorders are the only medical conditions overshadowed with sufficient fictional license to blur the boundaries between illness and health; a substantial mistake that further minimizes the crushing power of these illnesses and dismisses the suffering they cause as less than real.
Finally, these brazenly contradictory terms become outright ludicrous when we seal our most seriously ill citizens in the “mental health” sections of our jails and prisons.
We are hiding one of the deepest moral failures of our times in jail jumpsuits-out of sight-out of mind.
We have coddled the incongruence between mental health and mental illness too long. It serves no purpose except to hide the way we treat our mentally ill.
The evidence keeps pouring in; the disparate corollary between mental health and mental illness isn’t innocent; it is disastrous.
Peggy J. Symons © Copyright
I am bringing thousands of people with mental illnesses with me.
Many are silenced by stigma and discrimination; others cannot tell the stories of the life and death impact of delays and denials of psychiatric medicines.
The people I speak for have serious mental illnesses. Schizophrenia, bipolar disorder and suicidal despair are not mental health disorders. They are caused by real, life threatening, physical ravages in the function of the brain. Ninety percent of those who commit suicide had a diagnosable mental illness.
Before expertly and tediously prescribed modern medicines schizophrenia was either a life sentence or a death sentence; I lost half my life to it.
I failed on over thirty medications before my doctors finally found the right medications at the right doses. Failing on some of these medicines was like getting hit by a truck; hospitalization followed.
It is critical to note many psychiatric medications don’t work the same way; in addition, the function of the brain is individually unique and extraordinarily complex; medications that can save the life of one person can send someone else to the hospital. Carefully prescribed and balanced, our medications can build some beautiful bridges between what is broken by the physiology of mental illnesses and a meaningful life.
For me, as for others, missing one dose of carefully and individually prescribed medication, or the wrong medicine, begins to break the fragile bridges between hope and hopelessness.
In fact, Harvard Medical School found that missing from one to ten days of antipsychotic medications doubles the risk of hospitalization; its three days for me.
It is far easier and less expensive to prevent a psychiatric collapse than have to go back and pick up the pieces of the shattered hope of a meaningful life.
The future is closing in on mental illnesses. Science and suffering will join hands and then move on having created better treatments and medications and eventually cures. Research will eventually free us but for now, granting doctors the unimpeded ability to prescribe the right medicines at the right time at the right doses is the best hope of surviving these sometimes rapidly moving, too often deadly illnesses.
These difficult disorders of the brain don’t dwell on either side of a partisan divide; they dwell in families. One in five of us will have a mental illness at some point. No one is immune; not by wealth or estate, male or female, young or old. Stepping up to the Florida Legislature to represent all of us is both honorable and difficult.
Right now, we are at the intersection where many lost lives can become meaningful lives. If we look deeply into the faces of serious mental illnesses we will see our own humanity in these crossroads.
Time is turning in the light of this shared vision. There is a profound communion between hope and responsibility in our hands; what we do now will determine the future of mental illnesses in Florida.
Unfettered access to psychiatric medicines is the foundation of hope and the bridge into normal lives.
Never doubt you are appreciated.
Peggy J. Symons © Copyright
MY FAMILIES JOURNEY INTO HOPE
The Genetic Study of Schizophrenia;
National Institute of Mental Health
It has been
several years since my family
and I found a description of the Genetic Study of Schizophrenia in the “Advocate”, a quarterly publication of National Alliance on Mental Illness.
is an ongoing study at the
National Institute of Mental Health (NIMH) in Bethesda, Maryland.
Researchers are looking very closely at the genetic and non- genetic factors that raise the risks for schizophrenia.
Of eight siblings, I am the only one with a schizophrenic disorder.
applied to this study knowing that this research is generating information giving neuroscience the keys that
are beginning to break into the complex biological codes of
At the time, my brother’s business interest was providing computer technologies to researchers studying the genetic abnormalities within the full and complex human genome.
He recognized the neuro-imaging and genetic technologies as the most advanced tools of neuroscience in the world.
We embraced the opportunity to benefit others with this disorder.
This particular study, one of several, compared the genetic differences between siblings who are affected by schizophrenia and those who aren’t.
It was an opportunity for seven siblings to add an unusual wealth of information to research.
We were accepted into the study and welcomed as respected and valued partners in this pioneering research.
The National Institute of Mental Health arranged our flight schedules, hotel bookings, and testing days to maximize the rare time we had to spend together.
The study was a fast moving two days of detailed magnetic resonance imaging, interviews, and neuropsychological testing.
Other than a routine blood draw, there was no invasive testing.
family, the long road to the genetic
study of schizophrenia began almost three decades before.
hospitalized in 1975 after a three year slide into a psychotic
I fell into the hands of a psychiatrist who psychoanalyzed my hallucinations and assessed my entire family as“schiziophrenigenic”
fact that neurobiological anarchy was sweeping through my brain like a forest fire, realitybegan to dawn
on me by 1979: I had seven brothers and sisters and none of them were like me.
They were all working, going to school, or were in college.
We were of the same parents, and we were all raised by a courageous and hard working single mother who loved us all.
I was different from early in life.
As a young adult, hallucinations and depression were taking over my entire life.
None of my
brothers and sisters had ever
been brought to their knees by visions and voices and depression that paralyzed even my will to live.
I knew my family was not doing this to me; there was something wrong with my brain.
I found another psychiatrist who remained with me for twenty-five years as a constant source of expertise and encouragement.
Looking back from 2009, I call the primitive and hopeless psychiatry of the 1970s the “dungeons of the day.”
Old Freudian ideas that twisted the psychiatry of schizophrenia away from the brain onto blaming families were still widely held.
It was a dated era still spun with mythically monstrous mothers named and blamed as “schiziophrenigenic mothers”
psychoanalytic psychiatry of the 1970s perpetuated the influence of a century of Freudian ghosts that
linger to this day as
the deep shroud of shame, guilt, and misunderstanding that continues to obscure the neurobiological legitimacy of this illness.
Before we left the NIMH, I talked to the lead investigator of the study.
I told him
what it was like for me coming from the “dungeons of the day” 28 years ago to be working with the NIMH as a
full and respected partner in research that I never thought would happen in my lifetime.
At the time, I was told that five or six genes increasing the risk for schizophrenia had been discovered.
There are now many more genes suspected to have a role in this illness.
character of this progress is
a clear and bright light of new hope and promise moving at light speed in the right direction.
It is a privilege to be part of this revolution in neuroscience.
I believe that
with more study volunteers
like my family and I, the complex puzzles and codes of mental illnesses will be mapped out and solved in our lifetimes.
Looking back at the NIMH study, I can see my brothers and sisters in the full light of their loyalty and love.
They were all
indicted as “schiziophrenigenic” 34 years ago, but when this illness threatened to take me
away from them, they rose to the challenge and held out their hands to me in the moments that I otherwise would have drowned.
Six of them
were younger than I was when
this illness swept out of hell, yet they have traveled this distance with me unafraid.
They have made my life richer, funnier, and filled to overflowing as a sister, an aunt and a friend.
Without them, it would have been a dark and difficult journey.
With them, we walked this 34 year road out of darkness into daybreak.
Peggy J. Symons
National Alliance on Mental Illness of Greater Orlando
Peggy J. Symons © Copyright
CENTER STAGE FOR SCHIZOPHRENIA
THE ORLANDO SENTINEL
- Friday, March 22, 2002
As the date of the Academy Awards approaches, once again A Beautiful Mind is on the American mind.
The box-office draw of the story of the Nobel Prize
winner John Nash's journey through life with schizophrenia has pulled this
illness out of the dark and dusty basement of non-awareness right onto center
stage. It has created a bridge of shared experience as the story of Nash's life
unfolds with some striking parallels to my own experience of living with a
The frightening intensity of Nash's delusional world
was so authentically presented that I, of all people, thought it was real.
In the three months since the release of A Beautiful Mind, the widely
held stereotypes that we are categorically violent people or "split
personalities" are yielding to the understanding of just how human we are. There is a new understanding that a person living with schizophrenia can have a beautiful mind. People are now asking who we are. They are beginning to
understand our humanity and that this is an illness of intense impact. It is no
one's fault, and it is never a choice.
Neuroscience is advancing on
schizophrenia, but it is a complex, chronic and challenging disorder. It will
give up its secrets slowly. The current focus on mental illness is an
opportunity of immediate relevance to present the needs of mentally ill people
as issues of substance. One in five families is struggling with the brain
disorders causing mental illnesses.
If anyone is looking for us, many of
us are behind the locked doors of prisons. Often we are arrested for our
symptoms rather than for true criminal intent. It is illegal to lie on park
benches or trespass on Dumpsters.
As funding for vital mental-health services dwindles, prisons have become the de facto psychiatric hospitals of the 21st century. Reduced to dollars and no sense, the costs of jailing us are more expensive than it would be to treat us. We exist behind the locked doors of "no access" to effective treatment. We live behind the walls of stigma and misunderstanding. This is where much of our humanity remains hidden.
It has been through the new lens of A Beautiful Mind that we have been given the vision to understand, to value and to respect the inner beauty of so many people like John Nash, walking through life with chronic, severe mental illnesses.
These are our neighbors and our loved ones. Who will see their inner beauty and who will know their names? How do we answer the age-old question of conscience and responsibility? Am I my brother's keeper?
If my brothers and sisters are the most profoundly ill and vulnerable among us, then, yes, the answer always comes back close to me:
I am my brother's keeper.
Memo: PeggySymons lives in Deland,Florida. She is a member of the
National Alliance for the Mentally Ill and the Mental
LOVE LIGHTS CHAOS OF MENTAL ILLNESS
THE ORLANDO SENTINEL - Friday, January 14, 2000
Author: Peggy Symons , Special to the Sentinel
Who are these mentally ill people? They live under the interstate overpasses of every major
city. Some sit locked away in prisons, talking to voices no one else can hear. They are voiceless; they are faceless. They are my less-fortunate mentally ill brethren. They look like me. They are my
Mental illness, with all its terrible power and consequences, swept out of hell, and struck me down at age 19, as I grew into adulthood. Schizoaffective disorder is a biologically determined brain disease that has symptoms of both schizophrenia and depression. Like all major mental illnesses, it is caused by a devastating disruption of the finely balanced chemistry of the brain.
All my off-and-on time in the hospitals presented the still-unanswered question, ``Why did this happen?'' I was just starting a very promising college career, and my hopes and dreams for the future were solid and intact. Perhaps, in my lifetime, as the mysteries of the human brain unfold, I will know why.
Instead of focusing on why I became mentally ill, I seek to define my purpose. I look for a reason and direction to evolve from the chaos of my illness. During the years, sometimes the direction that this schizoaffective disorder has taken me appears to be a downward spiral. Through depression, psychotic thinking and impaired functioning, it has dragged me through hell with no apparent purpose or mercy. With expert management of medicines that have sometimes helped, I emerge with new eyes and gratitude. I see the world and other people from a newly visible land of the living.
At these times I experience life with a new quality and dimension, with a depth of understanding that can be experienced only by someone who has journeyed through hell and by the grace of God has emerged alive and intact. I have come to know the deepest currents of the human condition. I know fear. I know pain and despair, and I have touched the face of death. But, most of all, I know love. I know the love of God and the love of the people who cared for me. They never abandoned me even as I slipped away from them.
For 23 years my long-term support group has met every week. All of us have major mental illnesses. We have moved into midlife together, meeting every Friday to gather enough courage from each other to go out, each week, and keep trying. We have learned from each other that mental illness in no way diminishes anyone's humanity. We are all people, whatever the state of the chemistry of our brains.
The darkness of mental illness has sensitized me to the goodness and warmth of other people. I look for it. I reach for it. And, when I find it, I treasure it.
I share this account of schizophrenia and depression to illustrate the essential humanity of mentally ill people. It speaks of what I know of the light that illuminates all souls, mentally ill or not. This is the light that binds us all together, for better or worse, in this sometimes-leaky human boat. As I search for a way to tell people who never gave up on me how much they've meant, and I think of the people under overpasses and the people locked away in the prisons of their own minds, I remember something the son of God said in Matthew 25:40: Whatsoever you shall do unto the least of my brethren, that you do unto me.
Memo: Peggy Symons is a long-distance bicycle rider and lives in Chuluota with her cat, Lambie.
Edition: METRO Section: EDITORIAL Page: A15
Column: OTHER VIEWS MY WORD Index Terms: LETTERS TO THE EDITOR
Record Number: 0001140129 Copyright 2000 Sentinel Communications Co.
THE HOPE GIVERS
Hope is a fragile flame and a bright light. It is easy to give and even easier to take away. Once the flame of hope is lit it must be carefully kept and kindled.
When hope burns brightly there is fire in its feet and the breath of life is on its lips.
There is purity in its purpose, vision in its light and healing in its truth.
Whether we teach, write, counsel or mop the halls the hopeless walk we are all called to be hope givers and keepers of the flame.
Blessed are the hope givers.
Peggy J. Symons © Copyright
By Peggy J. Symons
They steal in on airways,
Reserved for what is real,
Make my thoughts all frightened slaves,
And twist the way I feel.
They'll never walk away with me,
or steal what I love,
they'll never snatch away my key,
to God and human love.
So, I walk in quiet courage
As all around me spins,
And come to know the strength I wage,
I know what's real wins.
© copyright Peggy J. Symons
The Gift of a Captive Mind
I am currently writing the Gift of a Captive Mind. It is new.
The only voices in the Captive Mind are those of the narrator. It is not a collection of other peoples stories either.
It is simply written to fill out academic presentations of mental illnesses with the actual experiences of living with them.
The purpose is also to highlight the grief and losses that come with mental illnesses so that the suffering of individuals and families will never be discounted or shuffled away unseen and without hope.
I don’t know when the Gift of a Captive Mind will be finished but the end is in sight.
I have never been part of any other book on mental illness that has any hope of coming into the light of day.